Media

Cure Batten In the News

Good Morning America
Originally Aired on Good Morning America. The Hollywood couple who started a foundation to quickly fund research to find a
Read more.
Chicago Tribune / Naperville Sun April 2016
Originally published on Chicago Tribune.com  on April 30th 2016. New therapy gives hope in children’s fight against fatal Batten disease. Suzanne
Read more.
People Magazine Exclusive
Originally Published on People.com. Parents Fund Breakthrough Therapy That May Treat Daughters’ Fatal Brain Disorder: ‘We Were Told to Take
Read more.
Deadline April 2016
Originally posted on Deadline.com April 27th 2016 ‘Miracle’ Producer Gordon Gray Might Have Gotten A Miracle For Daughters Suffering Fatal Rare
Read more.
Hollywood Reporter April 2016
Originally posted on Hollywood Reporter.com April 2016 Dwayne Johnson Partners With IfOnly for ‘Baywatch’ Auction to Benefit Batten Disease Foundation
Read more.
People Magazine – Jennifer Garner
Originally published on People.com October 15th 2015 Jennifer Garner Hosts Fundraiser to Help Family Cure Their Daughters’ Rare Brain Disease JASON
Read more.

Blog

Thursday Fun-9/12
Today was a great day.   We decided to go to Sweet Rose for some late afternoon treats and then to
Read more.
Newport Fun
Sometimes it is hard to escape the reality that has become our life but it is days like this that
Read more.
Sweet Gwen’s 2nd Birthday
We celebrated Gwen’s birthday on Saturday with close family and friends.  I have always put a lot of weight into
Read more.
Sweet Home Chicago
We traveled home to Chicago this past week for the BDSRA Conference.  While I was not looking forward to the
Read more.
Happy 4th of July
Happy 4th of July!  We started our celebration last night with some fun beach festivities; we didn’t quite make it
Read more.