Cure Batten In the News
Good Morning America
Originally Aired on Good Morning America. The Hollywood couple who started a foundation to quickly fund research to find aRead more.
Chicago Tribune / Naperville Sun April 2016
Originally published on Chicago Tribune.com on April 30th 2016. New therapy gives hope in children’s fight against fatal Batten disease. SuzanneRead more.
People Magazine Exclusive
Originally Published on People.com. Parents Fund Breakthrough Therapy That May Treat Daughters’ Fatal Brain Disorder: ‘We Were Told to TakeRead more.
Deadline April 2016
Originally posted on Deadline.com April 27th 2016 ‘Miracle’ Producer Gordon Gray Might Have Gotten A Miracle For Daughters Suffering Fatal RareRead more.
Hollywood Reporter April 2016
Originally posted on Hollywood Reporter.com April 2016 Dwayne Johnson Partners With IfOnly for ‘Baywatch’ Auction to Benefit Batten Disease FoundationRead more.
People Magazine – Jennifer Garner
Originally published on People.com October 15th 2015 Jennifer Garner Hosts Fundraiser to Help Family Cure Their Daughters’ Rare Brain Disease JASONRead more.
Today was a great day. We decided to go to Sweet Rose for some late afternoon treats and then toRead more.
Sometimes it is hard to escape the reality that has become our life but it is days like this thatRead more.
Sweet Gwen’s 2nd Birthday
We celebrated Gwen’s birthday on Saturday with close family and friends. I have always put a lot of weight intoRead more.
Sweet Home Chicago
We traveled home to Chicago this past week for the BDSRA Conference. While I was not looking forward to theRead more.
Happy 4th of July
Happy 4th of July! We started our celebration last night with some fun beach festivities; we didn’t quite make itRead more.