The Charlotte and Gwenyth Gray Foundation exists to improve and save the lives of all children impacted by Batten disease and other neurodegenerative disorders.
Founded by two parents committed to finding a cure for Batten disease to save the lives of their daughters, the Foundation recognizes firsthand the day-to-day challenges of living with a rare disease. In addition to funding research, the Foundation also provides financial support to families for education, patient therapies and equipment critical to their well-being and rehabilitation.
Imagine a disease that renders someone blind, immobile, and cognitively impaired — and that is eventually fatal. Now imagine this happens to a child. This is often the reality of Batten disease.
Watch the video above to learn more about the Gray family’s journey and what Batten disease is like, or read the Gray family’s story here.