Get Involved

Sponsor a terminally ill child with Batten CLN6. You monthly gift can make a difference! Commit to Sponsoring a child with Batten CLN6 by making a monthly donation. That donation will go directly towards lifesaving research and pre-clinical costs associated with the upcoming clinical trial at CHOC, Rady Children’s Health in April 2026. During the trial this funding will help offset the costs of equipment rentals, housing and travel for the 24 months following the treatment. If you prefer to sponsor a child that does not qualify for the trial, this funding will cover the costs of medical equipment, nursing care and other costs associated with caring for a child with a neurodegenerative disease.

Donate to be part of the cure or become a fundraiser! Reach out below to learn more.