Press Releases
Non-Profit Relaunches CLN6 Gene Therapy Program
The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease Announces New Partnership with Children's Hospital of Orange County (CHOC)
Los Angeles, CA—April 7, 2025—The Charlotte & Gwenyth Gray Foundation to CureBatten Disease is celebrating its ten-year milestone by joining forces with Children'sHospital of Orange County (CHOC), now part of Rady Children’s Health, to revitalizeand enhance the CLN6 gene therapy program. This partnership builds on the findingsfrom a Phase 1/2 clinical trial conducted from 2016-2020 at Nationwide Children'sHospital in Columbus, Ohio, reaffirming the commitment to progress in treating CLN6Batten disease, an agonizing condition with no existing approved treatments.
Los Angeles Magazine Article
Ten Years On, the Gray Foundation and CHOC Double Down in the Fight Against Batten Disease
When Gordon and Kristen Gray’s two young daughters were diagnosed with CLN6 Batten disease in 2015, the news was devastating. The rare genetic disorder, which robs children of their abilities before taking their lives, was virtually unknown outside a small circle of clinicians and desperate families. But the Grays, a Hollywood producer and his wife, refused to fade quietly into heartbreak. Instead, they launched the Charlotte & Gwenyth Gray Foundation, setting out to change the fate of children like theirs.
